Team Vehling

Their Story

Three Siblings. One Rare Disease.

Emilie, Brodie, and Maggie Mae Vehling are three siblings who share not only a family but a diagnosis — SMA-PME, one of the rarest diseases in the world. Their story, covered by Cedars-Sinai, shines a light on the extraordinary courage of a family navigating the unknown, and on the pioneering research that gives them hope.

A news article published by Cedars-Sinai tells their story in full. We encourage you to read it — and as you do, we ask you to keep one important thing in mind.

A note about donating: The Cedars-Sinai article invites readers to give directly to Cedars-Sinai Hospital. We ask you to consider donating to SMA-PME Research, our approved 501(c)(3) nonprofit, instead. We fund and support the same research being conducted at Cedars-Sinai — but as an independent nonprofit, we have organizational expenses that are essential to enabling that research to move forward. When you give to SMA-PME Research, your donation helps cover the costs — researcher support — that make this groundbreaking work possible for Emilie, Brodie, Maggie Mae, and every child diagnosed with SMA-PME around the world.

Read Their Story at Cedars-Sinai

Three Siblings. One Rare Disease.

For Team Vehling.